Kendric’s Journey: Treatment for Hairy Nevus
May 3, 2021
Maria’s Journey with an Ulcerated Hemangioma
September 23, 2021

Jouri’s Journey with Venous Malformation

Venous Malformation

 

Jouri was treated for a venous malformation at Little Baby Face Foundation when she was 3 years old.
 

Jouri was treated for a venous malformation at Little Baby Face Foundation when she was 3 years old.
 
 
Jouri’s venous malformation was initially misdiagnosed as a hemangioma. She and her family visited many doctors in her home country of Morocco, but it wasn’t until she contacted the Vascular Birthmark Foundation that she was referred to Little Baby Face Foundation and diagnosed with a venous malformation.

Jouri’s mom spoke very little English, so we managed in French and Arabic. We also appealed to the Moroccan community in NYC, and a wonderful volunteer sat with Jouri’s mother throughout the entire time Jouri was in surgery. It was very important to us that Jouri and her family feel welcome, supported, and at home throughout the course of Jouri’s treatment.

Had Jouri not received treatment, her venous malformation would likely have continued to grow and block her airway. As it was, Jouri’s venous malformation was impacting her speech and eating. Thankfully, Little Baby Face Foundation was able to fully treat Jouri, and she is now thriving.

Jouri used to refer to her venous malformation as “her prune,” which we thought was absolutely adorable. Dr. Milton Waner, the volunteer surgeon for Little Baby Face Foundation who treated Jouri, asked her the morning after her surgery, “what happened to your face?” Jouri replied that a monster came into her room the night before and took her prune. We still wonder if Jouri had some memories of her surgery, or if it was just her imagination. Either way, we’re delighted that she is prune-free and has grown into a healthy, happy, and confident child!

Jouri’s venous malformation was initially misdiagnosed as a hemangioma. She and her family visited many doctors in her home country of Morocco, but it wasn’t until she contacted the Vascular Birthmark Foundation that she was referred to Little Baby Face Foundation and diagnosed with a venous malformation.

Jouri’s mom spoke very little English, so we managed in French and Arabic. We also appealed to the Moroccan community in NYC, and a wonderful volunteer sat with Jouri’s mother throughout the entire time Jouri was in surgery. It was very important to us that Jouri and her family feel welcome, supported, and at home throughout the course of Jouri’s treatment.

Had Jouri not received treatment, her venous malformation would likely have continued to grow and block her airway. As it was, Jouri’s venous malformation was impacting her speech and eating. Thankfully, Little Baby Face Foundation was able to fully treat Jouri, and she is now thriving.

Jouri used to refer to her venous malformation as “her prune,” which we thought was absolutely adorable. Dr. Milton Waner, the volunteer surgeon for Little Baby Face Foundation who treated Jouri, asked her the morning after her surgery, “what happened to your face?” Jouri replied that a monster came into her room the night before and took her prune. We still wonder if Jouri had some memories of her surgery, or if it was just her imagination. Either way, we’re delighted that she is prune-free and has grown into a healthy, happy, and confident child!

If your child was born with Venous Malformation and you’re looking for help, please contact us using the form below.


    [cf7-hcaptcha* cf7-hcaptcha-285]

    If your child was born with Venous Malformation and you’re looking for help, please contact us using the form below.


      [cf7-hcaptcha* cf7-hcaptcha-285]

      Dylan’s Journey with Goldenhar Syndrome and Hemifacial Microsomia

      Dylan from Virginia Beach arrived at our offices for the first time in 2023. Dylan, born with Goldenhar Syndrome and hemifacial microsomia with microtia, is so inspiring because he researched and sought out help on his own.


      Goldenhar Syndrome, hemifacial microsomia with microtia

      Condition

      Virginia Beach

      Patient Origin

      Seng Ly’s Journey with Venous Malformation

      We want to introduce you to this sweet 3 year old boy from Cambodia, Seng Ly. He has been on quite a journey, not only traveling to New York City for the first time, but also in completely transforming his health and his face.


      Venous Malformation

      Condition

      Cambodia

      Patient Origin

      Reena Returns for Venous Malformation Treatment

      Reena, age 11 from the Philippines, came back to us recently to continue her treatment for the venous malformation on her lower lip, chin, gum, and tongue. Reena flew to New York City with her father for the first time in 2017 to have her first surgery with the Little Baby Face Foundation, and has had several trips back since.


      Venous Malformation

      Condition

      Philippines

      Patient Origin