Gracie was born with a segmental hemangioma as well as an airway hemangioma that obstructed 30% of her airway, making it difficult to breathe. Two weeks after her birth she lost her lower lip and both ears due to a severe ulceration. Her mother recalls holding a piece of Gracie’s ear and feeling completely helpless, not knowing what to do for her child. We are so glad that Gracie’s mother found the Little Baby Face Foundation.
Gracie was born with a segmental hemangioma as well as an airway hemangioma that obstructed 30% of her airway, making it difficult to breathe. Two weeks after her birth she lost her lower lip and both ears due to a severe ulceration. Her mother recalls holding a piece of Gracie’s ear and feeling completely helpless, not knowing what to do for her child. We are so glad that Gracie’s mother found the Little Baby Face Foundation.
Gracie has a very large scar on her face due to the ulceration that is very tight, which makes it difficult for her to open her mouth. It’s actually difficult to fit even a teaspoon or a toothbrush, so she had a feeding tube placed at one month old.
Doctors had advised that it would be very difficult to intubate if she needed it, so the first course of action in treating Gracie has been surgery to loosen the tethering and allow her mouth to open more. She will need to wear a bolster following this procedure, like a pillow under her chin. For a week or two post-surgery, she will be fed through her feeding tube. At the same time, Gracie is receiving ongoing laser treatments to reduce and remove the hemangioma on her face.
Gracie also has no outer ears (anotia), as they fell off due to the ulceration. Gracie will need many more procedures, but we’ve already made so much progress with this surgery to free up her mouth, reduce the hemangioma, and rebuild her lip.
Gracie lives in Oregon, so we fly her and her mom in for treatment in New York City. She’ll have to grow a bit before we can work on rebuilding her ears, probably for a few more years. But we will be ready, and we’ll stay in close contact with her family in the meantime, even after her laser treatments are completed. We will provide all necessary treatment to Gracie until she is 21.
All of this is being done at no cost to her family. The doctors at Little Baby Face Foundation provide treatment free of charge, and Northwell Health provides free operating rooms. We also partner with Ronald McDonald House to provide accommodations close to the hospital. You can read more about how our donations fund treatment for children like Gracie here, or consider making a donation of any size here. Every single dollar makes a difference.
We are happy to have Gracie as part of the Little Baby Face Foundation family, and we are honored to be able to help her improve her quality of life and watch her thrive and grow!
Doctors had advised that it would be very difficult to intubate if she needed it, so the first course of action in treating Gracie has been surgery to loosen the tethering and allow her mouth to open more. She will need to wear a bolster following this procedure, like a pillow under her chin. For a week or two post-surgery, she will be fed through her feeding tube. At the same time, Gracie is receiving ongoing laser treatments to reduce and remove the hemangioma on her face.
Gracie also has no outer ears (anotia), as they fell off due to the ulceration. Gracie will need many more procedures, but we’ve already made so much progress with this surgery to free up her mouth, reduce the hemangioma, and rebuild her lip.
Gracie lives in Oregon, so we fly her and her mom in for treatment in New York City. She’ll have to grow a bit before we can work on rebuilding her ears, probably for a few more years. But we will be ready, and we’ll stay in close contact with her family in the meantime, even after her laser treatments are completed. We will provide all necessary treatment to Gracie until she is 21.
All of this is being done at no cost to her family. The doctors at Little Baby Face Foundation provide treatment free of charge, and Northwell Health provides free operating rooms. We also partner with Ronald McDonald House to provide accommodations close to the hospital. You can read more about how our donations fund treatment for children like Gracie here, or consider making a donation of any size here. Every single dollar makes a difference.
We are happy to have Gracie as part of the Little Baby Face Foundation family, and we are honored to be able to help her improve her quality of life and watch her thrive and grow!
Gracie was born with a segmental hemangioma as well as an airway hemangioma that obstructed 30% of her airway, making it difficult to breathe. Two weeks after her birth she lost her lower lip and both ears due to a severe ulceration. Her mother recalls holding a piece of Gracie’s ear and feeling completely helpless, not knowing what to do for her child. We are so glad that Gracie’s mother found the Little Baby Face Foundation.
Gracie has a very large scar on her face due to the ulceration that is very tight, which makes it difficult for her to open her mouth. It’s actually difficult to fit even a teaspoon or a toothbrush, so she had a feeding tube placed at one month old.
Doctors had advised that it would be very difficult to intubate if she needed it, so the first course of action in treating Gracie has been surgery to loosen the tethering and allow her mouth to open more. She will need to wear a bolster following this procedure, like a pillow under her chin. For a week or two post-surgery, she will be fed through her feeding tube. At the same time, Gracie is receiving ongoing laser treatments to reduce and remove the hemangioma on her face.
Gracie also has no outer ears (anotia), as they fell off due to the ulceration. Gracie will need many more procedures, but we’ve already made so much progress with this surgery to free up her mouth, reduce the hemangioma, and rebuild her lip.
Gracie lives in Oregon, so we fly her and her mom in for treatment in New York City. She’ll have to grow a bit before we can work on rebuilding her ears, probably for a few more years. But we will be ready, and we’ll stay in close contact with her family in the meantime, even after her laser treatments are completed. We will provide all necessary treatment to Gracie until she is 21.
All of this is being done at no cost to her family. The doctors at Little Baby Face Foundation provide treatment free of charge, and Northwell Health provides free operating rooms. We also partner with Ronald McDonald House to provide accommodations close to the hospital. You can read more about how our donations fund treatment for children like Gracie here, or consider making a donation of any size here. Every single dollar makes a difference.
We are happy to have Gracie as part of the Little Baby Face Foundation family, and we are honored to be able to help her improve her quality of life and watch her thrive and grow!
Gracie has a very large scar on her face due to the ulceration that is very tight, which makes it difficult for her to open her mouth. It’s actually difficult to fit even a teaspoon or a toothbrush, so she had a feeding tube placed at one month old.
Doctors had advised that it would be very difficult to intubate if she needed it, so the first course of action in treating Gracie has been surgery to loosen the tethering and allow her mouth to open more. She will need to wear a bolster following this procedure, like a pillow under her chin. For a week or two post-surgery, she will be fed through her feeding tube. At the same time, Gracie is receiving ongoing laser treatments to reduce and remove the hemangioma on her face.
Gracie also has no outer ears (anotia), as they fell off due to the ulceration. Gracie will need many more procedures, but we’ve already made so much progress with this surgery to free up her mouth, reduce the hemangioma, and rebuild her lip.
Gracie lives in Oregon, so we fly her and her mom in for treatment in New York City. She’ll have to grow a bit before we can work on rebuilding her ears, probably for a few more years. But we will be ready, and we’ll stay in close contact with her family in the meantime, even after her laser treatments are completed. We will provide all necessary treatment to Gracie until she is 21.
All of this is being done at no cost to her family. The doctors at Little Baby Face Foundation provide treatment free of charge, and Northwell Health provides free operating rooms. We also partner with Ronald McDonald House to provide accommodations close to the hospital. You can read more about how our donations fund treatment for children like Gracie here, or consider making a donation of any size here. Every single dollar makes a difference.
We are happy to have Gracie as part of the Little Baby Face Foundation family, and we are honored to be able to help her improve her quality of life and watch her thrive and grow!
If your child was born with Hemangioma and Anotia and you’re looking for help, please contact us using the form below.
If your child was born with Hemangioma and Anotia and you’re looking for help, please contact us using the form below.
