Jouri was treated for a venous malformation at Little Baby Face Foundation when she was 3 years old.
 

Jouri was treated for a venous malformation at Little Baby Face Foundation when she was 3 years old.
 
 
 
Jouri’s venous malformation was initially misdiagnosed as a hemangioma. She and her family visited many doctors in her home country of Morocco, but it wasn’t until she contacted the Vascular Birthmark Foundation that she was referred to Little Baby Face Foundation and diagnosed with a venous malformation.

Jouri’s mom spoke very little English, so we managed in French and Arabic. We also appealed to the Moroccan community in NYC, and a wonderful volunteer sat with Jouri’s mother throughout the entire time Jouri was in surgery. It was very important to us that Jouri and her family feel welcome, supported, and at home throughout the course of Jouri’s treatment.

Had Jouri not received treatment, her venous malformation would likely have continued to grow and block her airway. As it was, Jouri’s venous malformation was impacting her speech and eating. Thankfully, Little Baby Face Foundation was able to fully treat Jouri, and she is now thriving.

Jouri used to refer to her venous malformation as “her prune,” which we thought was absolutely adorable. Dr. Milton Waner, the volunteer surgeon for Little Baby Face Foundation who treated Jouri, asked her the morning after her surgery, “what happened to your face?” Jouri replied that a monster came into her room the night before and took her prune. We still wonder if Jouri had some memories of her surgery, or if it was just her imagination. Either way, we’re delighted that she is prune-free and has grown into a healthy, happy, and confident child!

 
Jouri’s venous malformation was initially misdiagnosed as a hemangioma. She and her family visited many doctors in her home country of Morocco, but it wasn’t until she contacted the Vascular Birthmark Foundation that she was referred to Little Baby Face Foundation and diagnosed with a venous malformation.

Jouri’s mom spoke very little English, so we managed in French and Arabic. We also appealed to the Moroccan community in NYC, and a wonderful volunteer sat with Jouri’s mother throughout the entire time Jouri was in surgery. It was very important to us that Jouri and her family feel welcome, supported, and at home throughout the course of Jouri’s treatment.

Had Jouri not received treatment, her venous malformation would likely have continued to grow and block her airway. As it was, Jouri’s venous malformation was impacting her speech and eating. Thankfully, Little Baby Face Foundation was able to fully treat Jouri, and she is now thriving.

Jouri used to refer to her venous malformation as “her prune,” which we thought was absolutely adorable. Dr. Milton Waner, the volunteer surgeon for Little Baby Face Foundation who treated Jouri, asked her the morning after her surgery, “what happened to your face?” Jouri replied that a monster came into her room the night before and took her prune. We still wonder if Jouri had some memories of her surgery, or if it was just her imagination. Either way, we’re delighted that she is prune-free and has grown into a healthy, happy, and confident child!

 
If your child was born with Venous Malformation and you’re looking for help, please contact us using the form below.

     
    If your child was born with Venous Malformation and you’re looking for help, please contact us using the form below.